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Showing posts with the label carer

of the Death of a Lady's Man

I had plans to spend New Year's Eve the same way I usually do, keeping out of the heat as much as possible, and writing up my Year in Books blog post. But something very dramatic happened that changed not just the day's plans, but an awful lot of my life. Around 4:30 am on December 31st, 2016, I found Mr CJ dead in the garden. This is the story of how that came to be. Followers of this blog will have noticed that I've spent the last several years as a carer for Mr CJ. He had been sick for seven and half years, slowly declining all that time. It started with a headache that wouldn't go away, no matter what. Some months of hospitals and testing later, it was discovered that he had arthritis in his neck, featuring a growth spur that was pressing on the nerves as they exited the spinal column at that point. That meant chronic pain in his head, neck, arms and shoulders, limited mobility in his arms and hands, and reduced sensitivity in fingers that limited his dexterity....

on the Unbearable Pain of Being Alive

My family and I have had at least our fair share of health problems and hospital stays, but I never really understood how much pain there is in the world until I became Mr CJ's carer. When he first became unwell, I knew that it would take a long time and a gazillion tests before they worked out what was wrong with him. But I was still naive enough to imagine that once they worked out what the problem was, they would be able to treat him, and he might not get cured, but at least be able to manage and learn to live with it. That was four years ago. It turns out that even with all our whizz-bang medical technology, there's not much they can do with him other than prescribe addictive painkillers that just dull the pain, just a little. He's still in almost constant, intense pain. Whenever I look up from what I am doing, whether it's the dishes or a puzzle or blogging, the first thing I see is Mr CJ heroically bearing up under incredible pain. The first thing that happens...

of Things Remembered and Suddenly Found

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It was a late night for the Maroon Household last night. Yesterday afternoon, Mr. CJ managed to bang his head hard enough to be concerned about a concussion. The thing to do in these situations, of course, is to keep the person awake for a decent amount of time, twelve hours being a pretty good rule of thumb. So we prepared our favourite caffeinated beverages and settled in for a late night. We watched Pirates of the Caribbean , and some Stargate SG-1 . I read my current library book, Hallucinations by Oliver Sacks , which caused me to occasionally open the computer to google things like interictal personality syndrome ,  palinopsia and  the relationship between spirituality and temporal lobe epilepsy . I kept an eye on Mr. CJ to make sure he wasn't falling asleep. He's fine, by the way, and didn't fare any worse than a nasty headache. Amongst all these noctural activities, I somehow had a thought, a memory, come to me quite strongly. I was thinking about a series of ...

of Beauty to be Found - Day Tripping at the Public Hospital

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Today was a hospital day - half the day spent at the hospital while Mr CJ has a nerve-treating procedure, performed by a pain management specialist. Hmmm sounds like fun...not...much! But I have had enough of these hospital days to give me time to apply my philosophy of looking for the beauty in the everyday, of believing it is always there to be found, even surrounded by all the disasters and dramas that go on every day in a public hospital. So today I took my camera around the building and grounds for a little tourist-in-your-own-town action. One of my favourite things about this hospital is that is has its own book stall. What a brilliant idea! It's located as obviously as possible, just inside the main entrance, and there is always something different to see here. Some days the shelves are so chockers with books you can hardly get one out without knocking the whole stand over, then a few days later the shelves might be all but bare. All books are $1 and I think I've seen ...

and now for something a little different - a Rant against Scum-sucking Faceless Bureaucrats

When I started this blog, I decided that I really didn't want to be one of those bloggers who just whinge and whine. It's one thing to share hard stuff you're going through, it's another to just bitch and moan. I decided that I would apply the advice of the proverb I often heard used as a child - if you haven't got anything nice to say, don't say anything at all. Well, maybe that was a good theory - but I can see now that it's just not going to work out in practice. And so, a rant. If you don't feel inclined to read a rant about the evils of corporations and all such modern inconveniences, feel free to log off now and come back later when there's something more fun going on. You see, dear reader, I have spent two half-days over the last week on the phone, arguing with the phone company and their debt collectors. Perhaps a shiver is now running down your spine as you recall the horror of your own experience. The news is always full of dreadful sta...

The Op Shop Manifesto

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Op-shopping is more than just a past-time or a way to get cheap stuff for me. I am absolutely obsessed and addicted to op-shopping, beyond all reason. If I'm travelling along in a car, and I see an op shop, or even if I know we're close to one, my heart thumps and my pulse rises. On Thursdays and Fridays from 10am - 2pm, when the very best op shop is open, I just can't sit still. No matter how fiercely I had resolved not to go op shopping that week, it's hopeless. I have to be otherwise occupied or I will end up at the op shop. And I will come home with a garbage bag full. I just can't help myself. Fortunately, this is an addiction that has very few unpleasant side effects - the only one that I can think of being the clutter, and the growing likelihood that I will end up as a case study on that Hoarders show - but a great number of wonderfully positive side effects. Charities are supported, and in turn, the needy are cared for. Landfill is diverted and consumerism...